A qualitative exploration of the unmet psychosocial rehabilitation needs of cancer survivors in China

Ji-Wei Wang, Shen Qian, Ning DING, Tian-Rui Zhang, Zhi-Qi Yang, Cong Liu, Si-Jia Chen, Helen BERRY, Zheng-Ping Yuan

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

Objective
This study explores the unmet psychosocial rehabilitation needs of cancer survivors.

Methods
Sixty‐eight cancer survivors from the Shanghai Cancer Rehabilitation Club in China participated in one of the eight focus groups. These were transcribed verbatim, coded using thematic analysis and analysed using NVivo 10.

Results
Five main themes were identified: the need for (1) better information: Chinese cancer survivors find it difficult to sort and evaluate the overwhelming mass of information with which they are confronted; (2) psychological support: survivors fear cancer relapse and neighbours' discrimination against them; support from other cancer survivors can relieve the stress; (3) support for survivors' families: like the survivors, family members are under great but usually unacknowledged pressure; (4) improved health and medical services: community health service centres provide little medical, informational or psychological support for cancer survivors, who seek and expect more communication with doctors; and (5) assistance with the financial burden: costs of treatment and lack of adequate medical insurance cause substantial financial pressure for survivors.

Conclusions
This study shows that, in addition to their illness, Chinese cancer survivors experience a range of stresses related to their financial circumstances, lack of reliable and summarised information, poor access to support and services (including for their families) and discrimination. Support from families seems to improve survivors' ability to cope. Cancer survivors (and their families) need an integrated package of support from their families, doctors and other service providers, hospitals and communities. These findings can inform approaches to continuing care for cancer survivors
Original languageEnglish
Pages (from-to)905-912
Number of pages8
JournalPsycho-Oncology
Volume25
Issue number8
DOIs
Publication statusPublished - 1 Aug 2016

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Survivors
China
Neoplasms
Psychiatric Rehabilitation
Psychology
Community Health Centers
Pressure
Community Health Services
Access to Information
Aptitude
Insurance
Focus Groups
Health Care Costs
Health Services
Fear
Rehabilitation
Communication
Recurrence

Cite this

Wang, J-W., Qian, S., DING, N., Zhang, T-R., Yang, Z-Q., Liu, C., ... Yuan, Z-P. (2016). A qualitative exploration of the unmet psychosocial rehabilitation needs of cancer survivors in China. Psycho-Oncology, 25(8), 905-912. https://doi.org/10.1002/pon.4023
Wang, Ji-Wei ; Qian, Shen ; DING, Ning ; Zhang, Tian-Rui ; Yang, Zhi-Qi ; Liu, Cong ; Chen, Si-Jia ; BERRY, Helen ; Yuan, Zheng-Ping. / A qualitative exploration of the unmet psychosocial rehabilitation needs of cancer survivors in China. In: Psycho-Oncology. 2016 ; Vol. 25, No. 8. pp. 905-912.
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abstract = "ObjectiveThis study explores the unmet psychosocial rehabilitation needs of cancer survivors.MethodsSixty‐eight cancer survivors from the Shanghai Cancer Rehabilitation Club in China participated in one of the eight focus groups. These were transcribed verbatim, coded using thematic analysis and analysed using NVivo 10.ResultsFive main themes were identified: the need for (1) better information: Chinese cancer survivors find it difficult to sort and evaluate the overwhelming mass of information with which they are confronted; (2) psychological support: survivors fear cancer relapse and neighbours' discrimination against them; support from other cancer survivors can relieve the stress; (3) support for survivors' families: like the survivors, family members are under great but usually unacknowledged pressure; (4) improved health and medical services: community health service centres provide little medical, informational or psychological support for cancer survivors, who seek and expect more communication with doctors; and (5) assistance with the financial burden: costs of treatment and lack of adequate medical insurance cause substantial financial pressure for survivors.ConclusionsThis study shows that, in addition to their illness, Chinese cancer survivors experience a range of stresses related to their financial circumstances, lack of reliable and summarised information, poor access to support and services (including for their families) and discrimination. Support from families seems to improve survivors' ability to cope. Cancer survivors (and their families) need an integrated package of support from their families, doctors and other service providers, hospitals and communities. These findings can inform approaches to continuing care for cancer survivors",
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Wang, J-W, Qian, S, DING, N, Zhang, T-R, Yang, Z-Q, Liu, C, Chen, S-J, BERRY, H & Yuan, Z-P 2016, 'A qualitative exploration of the unmet psychosocial rehabilitation needs of cancer survivors in China', Psycho-Oncology, vol. 25, no. 8, pp. 905-912. https://doi.org/10.1002/pon.4023

A qualitative exploration of the unmet psychosocial rehabilitation needs of cancer survivors in China. / Wang, Ji-Wei; Qian, Shen; DING, Ning; Zhang, Tian-Rui; Yang, Zhi-Qi; Liu, Cong; Chen, Si-Jia; BERRY, Helen; Yuan, Zheng-Ping.

In: Psycho-Oncology, Vol. 25, No. 8, 01.08.2016, p. 905-912.

Research output: Contribution to journalArticle

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AU - Qian, Shen

AU - DING, Ning

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AU - Liu, Cong

AU - Chen, Si-Jia

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AU - Yuan, Zheng-Ping

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N2 - ObjectiveThis study explores the unmet psychosocial rehabilitation needs of cancer survivors.MethodsSixty‐eight cancer survivors from the Shanghai Cancer Rehabilitation Club in China participated in one of the eight focus groups. These were transcribed verbatim, coded using thematic analysis and analysed using NVivo 10.ResultsFive main themes were identified: the need for (1) better information: Chinese cancer survivors find it difficult to sort and evaluate the overwhelming mass of information with which they are confronted; (2) psychological support: survivors fear cancer relapse and neighbours' discrimination against them; support from other cancer survivors can relieve the stress; (3) support for survivors' families: like the survivors, family members are under great but usually unacknowledged pressure; (4) improved health and medical services: community health service centres provide little medical, informational or psychological support for cancer survivors, who seek and expect more communication with doctors; and (5) assistance with the financial burden: costs of treatment and lack of adequate medical insurance cause substantial financial pressure for survivors.ConclusionsThis study shows that, in addition to their illness, Chinese cancer survivors experience a range of stresses related to their financial circumstances, lack of reliable and summarised information, poor access to support and services (including for their families) and discrimination. Support from families seems to improve survivors' ability to cope. Cancer survivors (and their families) need an integrated package of support from their families, doctors and other service providers, hospitals and communities. These findings can inform approaches to continuing care for cancer survivors

AB - ObjectiveThis study explores the unmet psychosocial rehabilitation needs of cancer survivors.MethodsSixty‐eight cancer survivors from the Shanghai Cancer Rehabilitation Club in China participated in one of the eight focus groups. These were transcribed verbatim, coded using thematic analysis and analysed using NVivo 10.ResultsFive main themes were identified: the need for (1) better information: Chinese cancer survivors find it difficult to sort and evaluate the overwhelming mass of information with which they are confronted; (2) psychological support: survivors fear cancer relapse and neighbours' discrimination against them; support from other cancer survivors can relieve the stress; (3) support for survivors' families: like the survivors, family members are under great but usually unacknowledged pressure; (4) improved health and medical services: community health service centres provide little medical, informational or psychological support for cancer survivors, who seek and expect more communication with doctors; and (5) assistance with the financial burden: costs of treatment and lack of adequate medical insurance cause substantial financial pressure for survivors.ConclusionsThis study shows that, in addition to their illness, Chinese cancer survivors experience a range of stresses related to their financial circumstances, lack of reliable and summarised information, poor access to support and services (including for their families) and discrimination. Support from families seems to improve survivors' ability to cope. Cancer survivors (and their families) need an integrated package of support from their families, doctors and other service providers, hospitals and communities. These findings can inform approaches to continuing care for cancer survivors

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