Anticipating emotion

a qualitative study of advanced care planning in the community setting

Karen STRICKLAND, Fiona Minto

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

Advance care planning at the end of life is high on the political agenda
across the UK. The aim is to deliver patient-centred care for all
patients, whenever possible in their preferred place of care. It is widely
acknowledged that discussions about the end of life are sensitive and
often difficult for health professionals, particularly those in the
community setting. The aim of this qualitative study was to determine
the factors that assist or hinder the primary care health professionals
having these discussions. The sample included one GP and one district
nurse (DN) from each of three GP practices. Semi-structured
interviews were conducted with the participants, and the data was
analysed using a thematic approach. The findings clearly depict two of
the challenges faced by the GPs and DNs in the community: emotional
labour, and balancing patients’ and families’ expectations about care
provision in the community with the limited resources available. This
study contributes to the knowledge base of advance care planning by
providing insight into the experiences of the GPs and DNs who care
for patients at the end of life. Further research is required to more
fully understand the emotional impact on the health professionals
having these sensitive discussions.
Key words: Advanced care planning
Original languageEnglish
Pages (from-to)278
Number of pages284
JournalInternational Journal of Palliative Nursing
Volume17
Issue number6
DOIs
Publication statusPublished - 2011

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Advance Care Planning
Emotions
Patient-Centered Care
Knowledge Bases
Health
Primary Health Care
Research

Cite this

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abstract = "Advance care planning at the end of life is high on the political agendaacross the UK. The aim is to deliver patient-centred care for allpatients, whenever possible in their preferred place of care. It is widelyacknowledged that discussions about the end of life are sensitive andoften difficult for health professionals, particularly those in thecommunity setting. The aim of this qualitative study was to determinethe factors that assist or hinder the primary care health professionalshaving these discussions. The sample included one GP and one districtnurse (DN) from each of three GP practices. Semi-structuredinterviews were conducted with the participants, and the data wasanalysed using a thematic approach. The findings clearly depict two ofthe challenges faced by the GPs and DNs in the community: emotionallabour, and balancing patients’ and families’ expectations about careprovision in the community with the limited resources available. Thisstudy contributes to the knowledge base of advance care planning byproviding insight into the experiences of the GPs and DNs who carefor patients at the end of life. Further research is required to morefully understand the emotional impact on the health professionalshaving these sensitive discussions.Key words: Advanced care planning",
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Anticipating emotion : a qualitative study of advanced care planning in the community setting. / STRICKLAND, Karen; Minto, Fiona.

In: International Journal of Palliative Nursing, Vol. 17, No. 6, 2011, p. 278.

Research output: Contribution to journalArticle

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AB - Advance care planning at the end of life is high on the political agendaacross the UK. The aim is to deliver patient-centred care for allpatients, whenever possible in their preferred place of care. It is widelyacknowledged that discussions about the end of life are sensitive andoften difficult for health professionals, particularly those in thecommunity setting. The aim of this qualitative study was to determinethe factors that assist or hinder the primary care health professionalshaving these discussions. The sample included one GP and one districtnurse (DN) from each of three GP practices. Semi-structuredinterviews were conducted with the participants, and the data wasanalysed using a thematic approach. The findings clearly depict two ofthe challenges faced by the GPs and DNs in the community: emotionallabour, and balancing patients’ and families’ expectations about careprovision in the community with the limited resources available. Thisstudy contributes to the knowledge base of advance care planning byproviding insight into the experiences of the GPs and DNs who carefor patients at the end of life. Further research is required to morefully understand the emotional impact on the health professionalshaving these sensitive discussions.Key words: Advanced care planning

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