Abstract
Democratic or equal participation in decision making is an ideal that community and academic stakeholders engaged in participatory research strive to achieve. This ideal, however, may compete with indigenous peoples' right to self-determination. Study objectives were to assess the perceived influence of multiple community (indigenous) and academic stakeholders engaged in the Kahnawake Schools Diabetes Prevention Project (KSDPP) across six domains of project decision making and to test the hypothesis that KSDPP would be directed by community stakeholders. Self-report surveys were completed by 51 stakeholders comprising the KSDPP Community Advisory Board (CAB), KSDPP staff, academic researchers and supervisory board members. KSDPP staff were perceived to share similar levels of influence with (i) CAB on maintaining partnership ethics and CAB activities and (ii) academic researchers on research and dissemination activities. KSDPP staff were perceived to carry significantly more influence than other stakeholders on decisions related to annual activities, program operations and intervention activities. CAB and staff were the perceived owners of KSDPP. The strong community leadership aligns KSDPP with a model of community-directed research and suggests that equitable participation - distinct from democratic or equal participation - is reflected by indigenous community partners exerting greater influence than academic partners in decision making.
| Original language | English |
|---|---|
| Pages (from-to) | 904-914 |
| Number of pages | 11 |
| Journal | Health Education Research |
| Volume | 23 |
| Issue number | 5 |
| DOIs | |
| Publication status | Published - 1 Oct 2008 |
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Can the democratic ideal of participatory research be achieved? An inside look at an academic-indigenous community partnership. / Cargo, Margaret; Delormier, Treena; Lévesque, Lucie; Horn-Miller, Kahente; McComber, Alex; Macaulay, Ann C.
In: Health Education Research, Vol. 23, No. 5, 01.10.2008, p. 904-914.Research output: Contribution to journal › Article
TY - JOUR
T1 - Can the democratic ideal of participatory research be achieved? An inside look at an academic-indigenous community partnership
AU - Cargo, Margaret
AU - Delormier, Treena
AU - Lévesque, Lucie
AU - Horn-Miller, Kahente
AU - McComber, Alex
AU - Macaulay, Ann C.
PY - 2008/10/1
Y1 - 2008/10/1
N2 - Democratic or equal participation in decision making is an ideal that community and academic stakeholders engaged in participatory research strive to achieve. This ideal, however, may compete with indigenous peoples' right to self-determination. Study objectives were to assess the perceived influence of multiple community (indigenous) and academic stakeholders engaged in the Kahnawake Schools Diabetes Prevention Project (KSDPP) across six domains of project decision making and to test the hypothesis that KSDPP would be directed by community stakeholders. Self-report surveys were completed by 51 stakeholders comprising the KSDPP Community Advisory Board (CAB), KSDPP staff, academic researchers and supervisory board members. KSDPP staff were perceived to share similar levels of influence with (i) CAB on maintaining partnership ethics and CAB activities and (ii) academic researchers on research and dissemination activities. KSDPP staff were perceived to carry significantly more influence than other stakeholders on decisions related to annual activities, program operations and intervention activities. CAB and staff were the perceived owners of KSDPP. The strong community leadership aligns KSDPP with a model of community-directed research and suggests that equitable participation - distinct from democratic or equal participation - is reflected by indigenous community partners exerting greater influence than academic partners in decision making.
AB - Democratic or equal participation in decision making is an ideal that community and academic stakeholders engaged in participatory research strive to achieve. This ideal, however, may compete with indigenous peoples' right to self-determination. Study objectives were to assess the perceived influence of multiple community (indigenous) and academic stakeholders engaged in the Kahnawake Schools Diabetes Prevention Project (KSDPP) across six domains of project decision making and to test the hypothesis that KSDPP would be directed by community stakeholders. Self-report surveys were completed by 51 stakeholders comprising the KSDPP Community Advisory Board (CAB), KSDPP staff, academic researchers and supervisory board members. KSDPP staff were perceived to share similar levels of influence with (i) CAB on maintaining partnership ethics and CAB activities and (ii) academic researchers on research and dissemination activities. KSDPP staff were perceived to carry significantly more influence than other stakeholders on decisions related to annual activities, program operations and intervention activities. CAB and staff were the perceived owners of KSDPP. The strong community leadership aligns KSDPP with a model of community-directed research and suggests that equitable participation - distinct from democratic or equal participation - is reflected by indigenous community partners exerting greater influence than academic partners in decision making.
UR - http://www.scopus.com/inward/record.url?scp=52449111837&partnerID=8YFLogxK
U2 - 10.1093/her/cym077
DO - 10.1093/her/cym077
M3 - Article
VL - 23
SP - 904
EP - 914
JO - Health Education Research
JF - Health Education Research
SN - 0268-1153
IS - 5
ER -