Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas

Angela Dew, Kim Bulkeley, Craig Veitch, Anita Bundy, Michelle Lincoln, Jennie Brentnall, Gisselle Gallego, Scott Griffiths

Research output: Contribution to journalArticle

31 Citations (Scopus)

Abstract

There is a global movement for people with a disability towards person-centred practices with opportunities for self-determination and choice. Person-centred approaches may involve individual funding (IF) for the purchase of required support. A shift to a person-centred model and IF should allow people with a disability and their carers greater choice in therapy access. However, individuals who live in rural and remote areas have less choice and access to therapy services than their metropolitan counterparts. Drawing on data from a larger study into therapy service delivery in a rural and remote area of New South Wales, Australia, this study describes some benefits and barriers to using IF to access therapy services in rural areas. Ten carers and 60 service providers participated in audio-recorded focus groups and individual interviews during which IF was discussed. Transcribed data were analysed using thematic analysis and constant comparison. Greater access to and choice of therapy providers were identified as benefits of IF. Four barriers were identified: (i) lack of information and advice; (ii) limited local service options and capacity; (iii) higher costs and fewer services and (iv) complexity of self-managing packages. A range of strategies is required to address the barriers to using IF in rural and remote areas. Carers indicated a need for: accessible information; a local contact person for support and guidance; adequate financial compensation to offset additional travel expenses and coordinated eligibility and accountability systems. Service providers required: coordinated cross-sector approaches; local workforce planning to address therapist shortages; certainty around service viability and growth; clear policies and procedures around implementation of IF. This study highlights the need for further discussion and research about how to overcome the barriers to the optimal use of an IF model for those living in rural and remote areas.

Original languageEnglish
Pages (from-to)432-441
Number of pages10
JournalHealth and Social Care in the Community
Volume21
Issue number4
DOIs
Publication statusPublished - 1 Jul 2013
Externally publishedYes

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Disabled Children
Caregivers
service provider
funding
disability
Disabled Persons
experience
Therapeutics
human being
Personal Autonomy
South Australia
New South Wales
Social Responsibility
Focus Groups
Compensation and Redress
Interviews
local planning
Costs and Cost Analysis
self-determination
Growth

Cite this

Dew, Angela ; Bulkeley, Kim ; Veitch, Craig ; Bundy, Anita ; Lincoln, Michelle ; Brentnall, Jennie ; Gallego, Gisselle ; Griffiths, Scott. / Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas. In: Health and Social Care in the Community. 2013 ; Vol. 21, No. 4. pp. 432-441.
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Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas. / Dew, Angela; Bulkeley, Kim; Veitch, Craig; Bundy, Anita; Lincoln, Michelle; Brentnall, Jennie; Gallego, Gisselle; Griffiths, Scott.

In: Health and Social Care in the Community, Vol. 21, No. 4, 01.07.2013, p. 432-441.

Research output: Contribution to journalArticle

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