TY - JOUR
T1 - Culturally Safe eHealth Interventions With Aboriginal and Torres Strait Islander People
T2 - Culturally Safe eHealth Interventions With Aboriginal and Torres Strait Islander People: Protocol for a Best Practice Framework (JMIR Res Protoc (2022) 11:6 (e34904) DOI: 10.2196/34904)
AU - Chelberg, Georgina R.
AU - Butten, Kaley
AU - Mahoney, Ray
N1 - Funding Information:
This project will use governance from an existing multiagency research partnership, the eHealth Research Collaboration for Aboriginal and Torres Strait Islander Health (the Collaboration). The Collaboration was established in 2019 and is led by Indigenous researchers and scientists who guide the ethos of research activities and responsibilities. This approach facilitates co-creation and co-design methodologies where the voices, values, and priorities of Aboriginal and Torres Strait Islander communities and people are upheld. The Collaboration’s aim is to promote an evidence base for technology in health care specific to the interests and needs of Aboriginal and Torres Strait Islander people through the facilitation of eHealth research (with respect to consultation, co-design, trial, and evaluation) and the co-development of technologies. As such, the Collaboration will act as a Scientific Reference Group with input to the conduct and dissemination of the research activities. This research program is supported by an internal Commonwealth Scientific and Industrial Research Organisation (ACORN) grant. A member of the Collaboration is supported by the Queensland Children’s Hospital via a philanthropic grant from Woolworths.
Publisher Copyright:
© Georgina R Chelberg, Kaley Butten, Ray Mahoney, eHRCATSIH Group. Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 10.06.2022. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on https://www.researchprotocols.org, as well as this copyright and license information must be included.
Publisher Copyright:
© Georgina R Chelberg, Kaley Butten, Ray Mahoney, eHRCATSIH Group.
PY - 2022/10
Y1 - 2022/10
N2 - BACKGROUND: There is growing global evidence on the adoption and effectiveness of eHealth (including mobile health and telehealth) by First Nation peoples including Aboriginal and Torres Strait Islander people. Although there are frameworks to guide eHealth development, implementation, and evaluation, it is unknown whether they adequately encapsulate the health, cultural, and community-related priorities of Aboriginal and Torres Strait Islander people.OBJECTIVE: The aim of this research program is to prepare a best practice framework that will guide the co-design, implementation, and evaluation of culturally safe eHealth interventions within existing models of health care for Aboriginal and Torres Strait Islander people. The framework will be a synthesis of evidence that represents best practices in eHealth, as determined by Aboriginal and Torres Strait Islander people.METHODS: Research activities to develop the best practice framework will occur in stepped but overlapping qualitative research phases with governance from an existing multiagency research collaboration (the Collaboration). The research protocol has been informed by key research frameworks such as the SPIRIT (Standard Protocol Items: Recommendations for Interventional Trials) and Developers of Health Research Reporting Guidelines. The seven phases of research will include the following: systematic literature review, scoping review, theme development, theme consultation, Delphi processes for expert reviews, and dissemination.RESULTS: Members of the Collaboration conceived this research program in August 2020, and a draft was produced in June 2021 with subsequent funding obtained in July 2021. The Collaboration approved the protocol in December 2021. Results for several research phases of the best practice framework development are expected by January 2023, commencing with the systematic literature review and the scoping review.CONCLUSIONS: The research program outlined in this protocol is a timely response to the growing number of eHealth interventions with Aboriginal and Torres Strait Islander people. A best practice framework is needed to guide the rigorous development and evaluation of eHealth innovations to promote genuine co-design and ensure cultural safety and clinical effectiveness for Aboriginal and Torres Strait Islander people.INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/34904.
AB - BACKGROUND: There is growing global evidence on the adoption and effectiveness of eHealth (including mobile health and telehealth) by First Nation peoples including Aboriginal and Torres Strait Islander people. Although there are frameworks to guide eHealth development, implementation, and evaluation, it is unknown whether they adequately encapsulate the health, cultural, and community-related priorities of Aboriginal and Torres Strait Islander people.OBJECTIVE: The aim of this research program is to prepare a best practice framework that will guide the co-design, implementation, and evaluation of culturally safe eHealth interventions within existing models of health care for Aboriginal and Torres Strait Islander people. The framework will be a synthesis of evidence that represents best practices in eHealth, as determined by Aboriginal and Torres Strait Islander people.METHODS: Research activities to develop the best practice framework will occur in stepped but overlapping qualitative research phases with governance from an existing multiagency research collaboration (the Collaboration). The research protocol has been informed by key research frameworks such as the SPIRIT (Standard Protocol Items: Recommendations for Interventional Trials) and Developers of Health Research Reporting Guidelines. The seven phases of research will include the following: systematic literature review, scoping review, theme development, theme consultation, Delphi processes for expert reviews, and dissemination.RESULTS: Members of the Collaboration conceived this research program in August 2020, and a draft was produced in June 2021 with subsequent funding obtained in July 2021. The Collaboration approved the protocol in December 2021. Results for several research phases of the best practice framework development are expected by January 2023, commencing with the systematic literature review and the scoping review.CONCLUSIONS: The research program outlined in this protocol is a timely response to the growing number of eHealth interventions with Aboriginal and Torres Strait Islander people. A best practice framework is needed to guide the rigorous development and evaluation of eHealth innovations to promote genuine co-design and ensure cultural safety and clinical effectiveness for Aboriginal and Torres Strait Islander people.INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/34904.
KW - Aboriginal
KW - Australia
KW - best practice
KW - co-design
KW - culturally safe
KW - culturally sensitive
KW - development
KW - eHealth
KW - evaluation
KW - First Nations
KW - framework
KW - health care model
KW - Indigenous
KW - mHealth
KW - telehealth
KW - Torres Strait Islander
UR - http://www.scopus.com/inward/record.url?scp=85132034006&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/record.url?scp=85142893933&partnerID=8YFLogxK
U2 - 10.2196/43413
DO - 10.2196/43413
M3 - Article
C2 - 35687420
AN - SCOPUS:85142893933
SN - 1929-0748
VL - 11
SP - 1
EP - 12
JO - JMIR Research Protocols
JF - JMIR Research Protocols
IS - 10
M1 - e43413
ER -