Family centred care before and during life-sustaining treatment withdrawal in intensive care: A survey of information provided to families by Australasian critical care nurses

Kristen RANSE, Melissa Bloomer, Maureen Coombs, Ruth Endacott

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Background A core component of family-centred nursing care during the provision of end-of-life care in intensive care settings is information sharing with families. Yet little is known about information provided in these circumstances. Objective To identify information most frequently given by critical care nurses to families in preparation for and during withdrawal of life-sustaining treatment. Design An online cross-sectional survey. Methods During May 2015, critical care nurses in Australia and New Zealand were invited to complete the Preparing Families for Treatment Withdrawal questionnaire. Data analysis included descriptive statistics to identify areas of information most and least frequently shared with families. Cross tabulations with demographic data were used to explore any associations in the data. Results From the responses of 159 critical care nurses, information related to the emotional care and support of the family was most frequently provided to families in preparation for and during withdrawal of life-sustaining treatment. Variation was noted in the frequency of provision of information across body systems and their associated physical changes during the dying process. Significant associations (p <0.05) were identified between the variables gender, nursing experience and critical care experiences and some of the information items most and least frequently provided. Conclusions The provision of information during end-of-life care reflects a family-centred care approach by critical care nurses with information pertaining to emotional care and support of the family paramount. The findings of this study provide a useful framework for the development of interventions to improve practice and support nurses in communicating with families at this time.
Original languageEnglish
Pages (from-to)210-216
Number of pages7
JournalAustralian Critical Care
Volume29
Issue number4
DOIs
Publication statusPublished - 2016

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Critical Care
Nurses
Terminal Care
Therapeutics
Family Nursing
Critical Care Nursing
Surveys and Questionnaires
Information Dissemination
Nursing Care
New Zealand
Cross-Sectional Studies
Demography

Cite this

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title = "Family centred care before and during life-sustaining treatment withdrawal in intensive care: A survey of information provided to families by Australasian critical care nurses",
abstract = "Background A core component of family-centred nursing care during the provision of end-of-life care in intensive care settings is information sharing with families. Yet little is known about information provided in these circumstances. Objective To identify information most frequently given by critical care nurses to families in preparation for and during withdrawal of life-sustaining treatment. Design An online cross-sectional survey. Methods During May 2015, critical care nurses in Australia and New Zealand were invited to complete the Preparing Families for Treatment Withdrawal questionnaire. Data analysis included descriptive statistics to identify areas of information most and least frequently shared with families. Cross tabulations with demographic data were used to explore any associations in the data. Results From the responses of 159 critical care nurses, information related to the emotional care and support of the family was most frequently provided to families in preparation for and during withdrawal of life-sustaining treatment. Variation was noted in the frequency of provision of information across body systems and their associated physical changes during the dying process. Significant associations (p <0.05) were identified between the variables gender, nursing experience and critical care experiences and some of the information items most and least frequently provided. Conclusions The provision of information during end-of-life care reflects a family-centred care approach by critical care nurses with information pertaining to emotional care and support of the family paramount. The findings of this study provide a useful framework for the development of interventions to improve practice and support nurses in communicating with families at this time.",
keywords = "Communication, Critical care, End of life care, Family centred care, Intensive care, Nurse, Survey, Withdrawal of treatment",
author = "Kristen RANSE and Melissa Bloomer and Maureen Coombs and Ruth Endacott",
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journal = "Australian Critical Care",
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Family centred care before and during life-sustaining treatment withdrawal in intensive care: A survey of information provided to families by Australasian critical care nurses. / RANSE, Kristen; Bloomer, Melissa; Coombs, Maureen; Endacott, Ruth.

In: Australian Critical Care, Vol. 29, No. 4, 2016, p. 210-216.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Family centred care before and during life-sustaining treatment withdrawal in intensive care: A survey of information provided to families by Australasian critical care nurses

AU - RANSE, Kristen

AU - Bloomer, Melissa

AU - Coombs, Maureen

AU - Endacott, Ruth

PY - 2016

Y1 - 2016

N2 - Background A core component of family-centred nursing care during the provision of end-of-life care in intensive care settings is information sharing with families. Yet little is known about information provided in these circumstances. Objective To identify information most frequently given by critical care nurses to families in preparation for and during withdrawal of life-sustaining treatment. Design An online cross-sectional survey. Methods During May 2015, critical care nurses in Australia and New Zealand were invited to complete the Preparing Families for Treatment Withdrawal questionnaire. Data analysis included descriptive statistics to identify areas of information most and least frequently shared with families. Cross tabulations with demographic data were used to explore any associations in the data. Results From the responses of 159 critical care nurses, information related to the emotional care and support of the family was most frequently provided to families in preparation for and during withdrawal of life-sustaining treatment. Variation was noted in the frequency of provision of information across body systems and their associated physical changes during the dying process. Significant associations (p <0.05) were identified between the variables gender, nursing experience and critical care experiences and some of the information items most and least frequently provided. Conclusions The provision of information during end-of-life care reflects a family-centred care approach by critical care nurses with information pertaining to emotional care and support of the family paramount. The findings of this study provide a useful framework for the development of interventions to improve practice and support nurses in communicating with families at this time.

AB - Background A core component of family-centred nursing care during the provision of end-of-life care in intensive care settings is information sharing with families. Yet little is known about information provided in these circumstances. Objective To identify information most frequently given by critical care nurses to families in preparation for and during withdrawal of life-sustaining treatment. Design An online cross-sectional survey. Methods During May 2015, critical care nurses in Australia and New Zealand were invited to complete the Preparing Families for Treatment Withdrawal questionnaire. Data analysis included descriptive statistics to identify areas of information most and least frequently shared with families. Cross tabulations with demographic data were used to explore any associations in the data. Results From the responses of 159 critical care nurses, information related to the emotional care and support of the family was most frequently provided to families in preparation for and during withdrawal of life-sustaining treatment. Variation was noted in the frequency of provision of information across body systems and their associated physical changes during the dying process. Significant associations (p <0.05) were identified between the variables gender, nursing experience and critical care experiences and some of the information items most and least frequently provided. Conclusions The provision of information during end-of-life care reflects a family-centred care approach by critical care nurses with information pertaining to emotional care and support of the family paramount. The findings of this study provide a useful framework for the development of interventions to improve practice and support nurses in communicating with families at this time.

KW - Communication

KW - Critical care

KW - End of life care

KW - Family centred care

KW - Intensive care

KW - Nurse

KW - Survey

KW - Withdrawal of treatment

U2 - 10.1016/j.aucc.2016.08.006

DO - 10.1016/j.aucc.2016.08.006

M3 - Article

VL - 29

SP - 210

EP - 216

JO - Australian Critical Care

JF - Australian Critical Care

SN - 1036-7314

IS - 4

ER -