TY - JOUR
T1 - Filling the gaps and finding our way
T2 - family carers navigating the healthcare system to access physical health services for the people they care for
AU - Happell, Brenda
AU - Wilson, Karen
AU - Platania-Phung, Chris
AU - Stanton, Robert
PY - 2017/7/1
Y1 - 2017/7/1
N2 - Aims and Objectives: To elicit the perspectives of carers of people with mental illness regarding access to, and experience with, physical healthcare services for mental health consumers. Background: People diagnosed with mental illness have increased risks of physical illness and earlier death, problems able to be addressed through better physical health services. Carers of people with mental illness play a significant role in the mental healthcare system yet research examining their views is lacking. Design: Qualitative exploratory. Methods: In-depth interviews were conducted with 13 mental health carers. They were asked to describe their views and experiences pertaining to the physical health and availability of physical health care for the people they care for. Data were analysed using the framework of Braun and Clarke. Results: Analysis of carer responses identified two important themes: responsiveness and access, and a shortage of care coordination. Carers felt alienated from physical healthcare providers and were compelled to fill gaps in available care through persistence in ensuring access to physical healthcare services. Conclusions: The findings identify carers as key stakeholders in the physical health care for the people they care for. Their involvement in accessing and coordinating care provides vital perspective on health service capacity, which requires further consideration in the practice and research domains. Relevance to clinical practice: Carers of people diagnosed with mental illness are crucial to the effective delivery of mental health services. Their perspectives must be central to their research agenda and contribute to the development of initiatives to improve clinical practice and promote improved physical health care.
AB - Aims and Objectives: To elicit the perspectives of carers of people with mental illness regarding access to, and experience with, physical healthcare services for mental health consumers. Background: People diagnosed with mental illness have increased risks of physical illness and earlier death, problems able to be addressed through better physical health services. Carers of people with mental illness play a significant role in the mental healthcare system yet research examining their views is lacking. Design: Qualitative exploratory. Methods: In-depth interviews were conducted with 13 mental health carers. They were asked to describe their views and experiences pertaining to the physical health and availability of physical health care for the people they care for. Data were analysed using the framework of Braun and Clarke. Results: Analysis of carer responses identified two important themes: responsiveness and access, and a shortage of care coordination. Carers felt alienated from physical healthcare providers and were compelled to fill gaps in available care through persistence in ensuring access to physical healthcare services. Conclusions: The findings identify carers as key stakeholders in the physical health care for the people they care for. Their involvement in accessing and coordinating care provides vital perspective on health service capacity, which requires further consideration in the practice and research domains. Relevance to clinical practice: Carers of people diagnosed with mental illness are crucial to the effective delivery of mental health services. Their perspectives must be central to their research agenda and contribute to the development of initiatives to improve clinical practice and promote improved physical health care.
KW - carers
KW - health services
KW - mental health
KW - mental health nursing
KW - mental illness
KW - physical health
KW - Humans
KW - Mental Disorders/therapy
KW - Caregivers/psychology
KW - Health Personnel/organization & administration
KW - Health Services Accessibility
KW - Interviews as Topic
KW - Qualitative Research
KW - Mental Health Services/organization & administration
UR - http://www.scopus.com/inward/record.url?scp=85017349079&partnerID=8YFLogxK
U2 - 10.1111/jocn.13505
DO - 10.1111/jocn.13505
M3 - Article
C2 - 27532899
AN - SCOPUS:85017349079
SN - 0962-1067
VL - 26
SP - 1917
EP - 1926
JO - Journal of Clinical Nursing
JF - Journal of Clinical Nursing
IS - 13-14
ER -