TY - JOUR
T1 - Health indicators in intellectual developmental disorders
T2 - The key findings of the POMONA-ESP project
AU - Folch, Annabel
AU - Salvador-Carulla, Luis
AU - Vicens, Paloma
AU - Cortés, Maria José
AU - Irazábal, Marcia
AU - Muñoz, Silvia
AU - Rovira, Lluís
AU - Orejuela, Carmen
AU - González, Juan A.
AU - Martínez-Leal, Rafael
N1 - Funding Information:
ThePOMONA-ESPprojectwasfundedbytheFondodeInvestigaciD?n Sanitaria (FIS) (PI12/01237) (2013–2016) from the Instituto de Salud Carlos III (ISCIII)—Ministry of Economy and Competitiveness, Spain; and partially funded by FundaciD?Port Aventura. The authors wish to thank all professionals, and participants of the POMONA-ESP project for their contribution.
Publisher Copyright:
© 2018 John Wiley & Sons Ltd
PY - 2019/1
Y1 - 2019/1
N2 - Background: The aim of this paper was to summarize the main results of the POMONA-ESP project, the first study to explore health status in a large representative, randomized and stratified sample of people with intellectual developmental disorders in Spain. Methods: The POMONA-ESP project collected information about the health of 953 individuals with intellectual developmental disorders. Results: Diseases such as urinary incontinence, oral problems, epilepsy, constipation or obesity were highly prevalent among the participants; with gender-differentiated prevalences for certain conditions, and age and intellectual disability level as risk factors for disease. Overmedication was common in the sample, and drugs were often prescribed without any clinical indication or follow-up. The present authors also found a lack of important relevant information about the participant's health and a lack of adequate genetic counselling. Conclusions: Our findings may contribute to a better understanding of health status and needs of people with intellectual developmental disorders and suggest several courses of action to improve their health care.
AB - Background: The aim of this paper was to summarize the main results of the POMONA-ESP project, the first study to explore health status in a large representative, randomized and stratified sample of people with intellectual developmental disorders in Spain. Methods: The POMONA-ESP project collected information about the health of 953 individuals with intellectual developmental disorders. Results: Diseases such as urinary incontinence, oral problems, epilepsy, constipation or obesity were highly prevalent among the participants; with gender-differentiated prevalences for certain conditions, and age and intellectual disability level as risk factors for disease. Overmedication was common in the sample, and drugs were often prescribed without any clinical indication or follow-up. The present authors also found a lack of important relevant information about the participant's health and a lack of adequate genetic counselling. Conclusions: Our findings may contribute to a better understanding of health status and needs of people with intellectual developmental disorders and suggest several courses of action to improve their health care.
KW - developmental disabilities
KW - health conditions
KW - health profiles
KW - intellectual developmental disorders
KW - intellectual disability
UR - http://www.scopus.com/inward/record.url?scp=85057988004&partnerID=8YFLogxK
U2 - 10.1111/jar.12498
DO - 10.1111/jar.12498
M3 - Article
C2 - 29947460
AN - SCOPUS:85057988004
SN - 1360-2322
VL - 32
SP - 23
EP - 34
JO - Journal of Applied Research in Intellectual Disabilities
JF - Journal of Applied Research in Intellectual Disabilities
IS - 1
ER -
