Intellectual disability and autism

Socioeconomic impacts of informal caring, projected to 2030

Deborah Schofield, Melanie J.B. Zeppel, Robert TANTON, Lennert J. Veerman, Simon KELLY, Megan E. Passey, Rupendra N. Shrestha

Research output: Contribution to journalArticle

Abstract

Background: Intellectual disability and autism spectrum disorder (ASD) influence the interactions of a person with their environment and generate economic and socioeconomic costs for the person, their family and society. Aims: To estimate costs of lost workforce participation due to informal caring for people with intellectual disability or autism spectrum disorders by estimating lost income to individuals, lost taxation payments to federal government and increased welfare payments. Method: We used a microsimulation model based on the Australian Bureau of Statistics' Surveys of Disability, Ageing and Carers (population surveys of people aged 15-64), and projected costs of caring from 2015 in 5-year intervals to 2030. Results: The model estimated that informal carers of people with intellectual disability and/or ASD in Australia had aggregated lost income of AU$310 million, lost taxation of AU$100 million and increased welfare payments of AU$204 million in 2015. These are projected to increase to AU$432 million, AU$129 million and AU$254 million for income, taxation, and welfare respectively by 2030. The income gap of carers for people with intellectual disability and/or ASD is estimated to increase by 2030, meaning more financial stress for carers. Conclusions: Informal carers of people with intellectual disability and/or ASD experience significant loss of income, leading to increased welfare payments and reduced taxation revenue for governments; these are all projected to increase. Strategic policies supporting informal carers wishing to return to work could improve the financial and psychological impact of having a family member with intellectual disability and/or ASD. Declaration of interest: None.
Original languageEnglish
Pages (from-to)654-660
Number of pages7
JournalThe British Journal of Psychiatry
Volume215
Issue number5
DOIs
Publication statusPublished - 2019

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Autistic Disorder
Intellectual Disability
Caregivers
Taxes
Disabled Persons
Costs and Cost Analysis
Federal Government
Return to Work
Autism Spectrum Disorder
Economics
Psychology
Population

Cite this

Schofield, D., Zeppel, M. J. B., TANTON, R., Veerman, L. J., KELLY, S., Passey, M. E., & Shrestha, R. N. (2019). Intellectual disability and autism: Socioeconomic impacts of informal caring, projected to 2030. The British Journal of Psychiatry, 215(5), 654-660. https://doi.org/10.1192/bjp.2019.204
Schofield, Deborah ; Zeppel, Melanie J.B. ; TANTON, Robert ; Veerman, Lennert J. ; KELLY, Simon ; Passey, Megan E. ; Shrestha, Rupendra N. / Intellectual disability and autism : Socioeconomic impacts of informal caring, projected to 2030. In: The British Journal of Psychiatry. 2019 ; Vol. 215, No. 5. pp. 654-660.
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Schofield, D, Zeppel, MJB, TANTON, R, Veerman, LJ, KELLY, S, Passey, ME & Shrestha, RN 2019, 'Intellectual disability and autism: Socioeconomic impacts of informal caring, projected to 2030', The British Journal of Psychiatry, vol. 215, no. 5, pp. 654-660. https://doi.org/10.1192/bjp.2019.204

Intellectual disability and autism : Socioeconomic impacts of informal caring, projected to 2030. / Schofield, Deborah; Zeppel, Melanie J.B.; TANTON, Robert; Veerman, Lennert J.; KELLY, Simon; Passey, Megan E.; Shrestha, Rupendra N.

In: The British Journal of Psychiatry, Vol. 215, No. 5, 2019, p. 654-660.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Intellectual disability and autism

T2 - Socioeconomic impacts of informal caring, projected to 2030

AU - Schofield, Deborah

AU - Zeppel, Melanie J.B.

AU - TANTON, Robert

AU - Veerman, Lennert J.

AU - KELLY, Simon

AU - Passey, Megan E.

AU - Shrestha, Rupendra N.

PY - 2019

Y1 - 2019

N2 - Background: Intellectual disability and autism spectrum disorder (ASD) influence the interactions of a person with their environment and generate economic and socioeconomic costs for the person, their family and society. Aims: To estimate costs of lost workforce participation due to informal caring for people with intellectual disability or autism spectrum disorders by estimating lost income to individuals, lost taxation payments to federal government and increased welfare payments. Method: We used a microsimulation model based on the Australian Bureau of Statistics' Surveys of Disability, Ageing and Carers (population surveys of people aged 15-64), and projected costs of caring from 2015 in 5-year intervals to 2030. Results: The model estimated that informal carers of people with intellectual disability and/or ASD in Australia had aggregated lost income of AU$310 million, lost taxation of AU$100 million and increased welfare payments of AU$204 million in 2015. These are projected to increase to AU$432 million, AU$129 million and AU$254 million for income, taxation, and welfare respectively by 2030. The income gap of carers for people with intellectual disability and/or ASD is estimated to increase by 2030, meaning more financial stress for carers. Conclusions: Informal carers of people with intellectual disability and/or ASD experience significant loss of income, leading to increased welfare payments and reduced taxation revenue for governments; these are all projected to increase. Strategic policies supporting informal carers wishing to return to work could improve the financial and psychological impact of having a family member with intellectual disability and/or ASD. Declaration of interest: None.

AB - Background: Intellectual disability and autism spectrum disorder (ASD) influence the interactions of a person with their environment and generate economic and socioeconomic costs for the person, their family and society. Aims: To estimate costs of lost workforce participation due to informal caring for people with intellectual disability or autism spectrum disorders by estimating lost income to individuals, lost taxation payments to federal government and increased welfare payments. Method: We used a microsimulation model based on the Australian Bureau of Statistics' Surveys of Disability, Ageing and Carers (population surveys of people aged 15-64), and projected costs of caring from 2015 in 5-year intervals to 2030. Results: The model estimated that informal carers of people with intellectual disability and/or ASD in Australia had aggregated lost income of AU$310 million, lost taxation of AU$100 million and increased welfare payments of AU$204 million in 2015. These are projected to increase to AU$432 million, AU$129 million and AU$254 million for income, taxation, and welfare respectively by 2030. The income gap of carers for people with intellectual disability and/or ASD is estimated to increase by 2030, meaning more financial stress for carers. Conclusions: Informal carers of people with intellectual disability and/or ASD experience significant loss of income, leading to increased welfare payments and reduced taxation revenue for governments; these are all projected to increase. Strategic policies supporting informal carers wishing to return to work could improve the financial and psychological impact of having a family member with intellectual disability and/or ASD. Declaration of interest: None.

KW - Autism

KW - Informal carers

KW - Intellectual disability

UR - http://www.mendeley.com/research/intellectual-disability-autism-socioeconomic-impacts-informal-caring-projected-2030

U2 - 10.1192/bjp.2019.204

DO - 10.1192/bjp.2019.204

M3 - Article

VL - 215

SP - 654

EP - 660

JO - The Journal of mental science

JF - The Journal of mental science

SN - 0007-1250

IS - 5

ER -