Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales

Penney Upton, Christine Eiser, Ivy Cheung, Hayley A. Hutchings, Meriel E M Jenney, Alison Maddocks, Ian T. Russell, John G Williams

Research output: Contribution to journalArticle

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Abstract

BACKGROUND: Health related quality of life (HRQL) has been recognised as an important paediatric outcome measurement. One of the more promising measures to emerge in recent years is the Pediatric Quality Of Life Inventory (PedsQL), developed in the US. Advantages of the PedsQL include brevity, availability of age appropriate versions and parallel forms for child and parent. This study developed a UK-English version of PedsQL generic module and assessed its performance in a group of UK children and their parents.

METHODS: PedsQL was translated to UK-English. The psychometric properties of the UK version were then tested following administration to 1399 children and 970 of their parents. The sample included healthy children, children diagnosed with asthma, diabetes or inflammatory bowel disease and children in remission from cancer.

RESULTS: Psychometric properties were similar to those reported for the original PedsQL. Internal reliability exceeded 0.70 for all proxy and self-report sub-scales. Discriminant validity was established for proxy and self-report with higher HRQL being reported for healthy children than those with health problems. Sex differences were noted on the emotional functioning subscale, with females reporting lower HRQL than males. Proxy and self-report correlation was higher for children with health problems than for healthy children.

CONCLUSION: The UK-English version of PedsQL performed as well as the original PedsQL and is recommended for assessment of paediatric HRQL in the UK.

Original languageEnglish
Pages (from-to)1-7
Number of pages7
JournalHealth and Quality of Life Outcomes
Volume3
DOIs
Publication statusPublished - 1 Apr 2005
Externally publishedYes

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Quality of Life
Pediatrics
Equipment and Supplies
Proxy
Self Report
Psychometrics
Parents
Inflammatory Bowel Diseases
Sex Characteristics
Asthma
Health
Neoplasms

Cite this

Upton, Penney ; Eiser, Christine ; Cheung, Ivy ; Hutchings, Hayley A. ; Jenney, Meriel E M ; Maddocks, Alison ; Russell, Ian T. ; Williams, John G. / Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. In: Health and Quality of Life Outcomes. 2005 ; Vol. 3. pp. 1-7.
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Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. / Upton, Penney; Eiser, Christine; Cheung, Ivy; Hutchings, Hayley A.; Jenney, Meriel E M; Maddocks, Alison; Russell, Ian T.; Williams, John G.

In: Health and Quality of Life Outcomes, Vol. 3, 01.04.2005, p. 1-7.

Research output: Contribution to journalArticle

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T1 - Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales

AU - Upton, Penney

AU - Eiser, Christine

AU - Cheung, Ivy

AU - Hutchings, Hayley A.

AU - Jenney, Meriel E M

AU - Maddocks, Alison

AU - Russell, Ian T.

AU - Williams, John G

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N2 - BACKGROUND: Health related quality of life (HRQL) has been recognised as an important paediatric outcome measurement. One of the more promising measures to emerge in recent years is the Pediatric Quality Of Life Inventory (PedsQL), developed in the US. Advantages of the PedsQL include brevity, availability of age appropriate versions and parallel forms for child and parent. This study developed a UK-English version of PedsQL generic module and assessed its performance in a group of UK children and their parents.METHODS: PedsQL was translated to UK-English. The psychometric properties of the UK version were then tested following administration to 1399 children and 970 of their parents. The sample included healthy children, children diagnosed with asthma, diabetes or inflammatory bowel disease and children in remission from cancer.RESULTS: Psychometric properties were similar to those reported for the original PedsQL. Internal reliability exceeded 0.70 for all proxy and self-report sub-scales. Discriminant validity was established for proxy and self-report with higher HRQL being reported for healthy children than those with health problems. Sex differences were noted on the emotional functioning subscale, with females reporting lower HRQL than males. Proxy and self-report correlation was higher for children with health problems than for healthy children.CONCLUSION: The UK-English version of PedsQL performed as well as the original PedsQL and is recommended for assessment of paediatric HRQL in the UK.

AB - BACKGROUND: Health related quality of life (HRQL) has been recognised as an important paediatric outcome measurement. One of the more promising measures to emerge in recent years is the Pediatric Quality Of Life Inventory (PedsQL), developed in the US. Advantages of the PedsQL include brevity, availability of age appropriate versions and parallel forms for child and parent. This study developed a UK-English version of PedsQL generic module and assessed its performance in a group of UK children and their parents.METHODS: PedsQL was translated to UK-English. The psychometric properties of the UK version were then tested following administration to 1399 children and 970 of their parents. The sample included healthy children, children diagnosed with asthma, diabetes or inflammatory bowel disease and children in remission from cancer.RESULTS: Psychometric properties were similar to those reported for the original PedsQL. Internal reliability exceeded 0.70 for all proxy and self-report sub-scales. Discriminant validity was established for proxy and self-report with higher HRQL being reported for healthy children than those with health problems. Sex differences were noted on the emotional functioning subscale, with females reporting lower HRQL than males. Proxy and self-report correlation was higher for children with health problems than for healthy children.CONCLUSION: The UK-English version of PedsQL performed as well as the original PedsQL and is recommended for assessment of paediatric HRQL in the UK.

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KW - Journal Article

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JO - Health and Quality of Life Outcomes

JF - Health and Quality of Life Outcomes

SN - 1477-7525

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