Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies

Hanna Suominen; Henning Müller; Lucila Ohno-Machado; Sanna Salanterä; Günter Schreier; Leif Hanlen

doi:10.3233/978-1-61499-830-3-1312

Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies

Hanna Suominen
, Henning Müller
, Lucila Ohno-Machado
, Sanna Salanterä
, Günter Schreier
, Leif Hanlen

Research output: A Conference proceeding or a Chapter in Book › Conference contribution › peer-review

3 Citations (Scopus)

101 Downloads (Pure)

Abstract

The policies that address health information exchanges for research purposes in Australia, Austria, Finland, Switzerland, and the USA apply accountability and/or adequacy to protect privacy. Specific requirements complicate the exchanges: inform data subjects of data use purposes; assure that the subjects are no longer identifiable; destroy the data in the end; and not to use cloud computing without specific permission.

Original language	English
Title of host publication	MEDINFO 2017
Subtitle of host publication	Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics
Editors	Adi V. Gundlapalli, Jaulent Marie-Christine, Zhao Dongsheng
Place of Publication	Netherlands
Publisher	IOS Press
Pages	1312
Number of pages	1
Volume	245
Edition	2017
ISBN (Electronic)	9781614998303
ISBN (Print)	9781614998297
DOIs	https://doi.org/10.3233/978-1-61499-830-3-1312
Publication status	Published - 1 Jan 2017
Event	16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017 - Hangzhou, China Duration: 21 Aug 2017 → 25 Aug 2017

Publication series

Name	Studies in Health Technology and Informatics
Volume	245
ISSN (Print)	0926-9630
ISSN (Electronic)	1879-8365

Conference

Conference	16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017
Country/Territory	China
City	Hangzhou
Period	21/08/17 → 25/08/17

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Access to Document

10.3233/978-1-61499-830-3-1312Licence: CC BY-NC

ConferenceFinal published version, 84.9 KBLicence: CC BY-NC

Cite this

Suominen, H., Müller, H., Ohno-Machado, L., Salanterä, S., Schreier, G., & Hanlen, L. (2017). Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies. In A. V. Gundlapalli, J. Marie-Christine, & Z. Dongsheng (Eds.), MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics (2017 ed., Vol. 245, pp. 1312). (Studies in Health Technology and Informatics; Vol. 245). IOS Press. https://doi.org/10.3233/978-1-61499-830-3-1312

Suominen, Hanna ; Müller, Henning ; Ohno-Machado, Lucila et al. / Prerequisites for International Exchanges of Health Information for Record Research : Comparison of Australian, Austrian, Finnish, Swiss, and US policies. MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics. editor / Adi V. Gundlapalli ; Jaulent Marie-Christine ; Zhao Dongsheng. Vol. 245 2017. ed. Netherlands : IOS Press, 2017. pp. 1312 (Studies in Health Technology and Informatics).

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title = "Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies",

abstract = "The policies that address health information exchanges for research purposes in Australia, Austria, Finland, Switzerland, and the USA apply accountability and/or adequacy to protect privacy. Specific requirements complicate the exchanges: inform data subjects of data use purposes; assure that the subjects are no longer identifiable; destroy the data in the end; and not to use cloud computing without specific permission.",

keywords = "Electronic health records, Health policy, Privacy",

author = "Hanna Suominen and Henning M{\"u}ller and Lucila Ohno-Machado and Sanna Salanter{\"a} and G{\"u}nter Schreier and Leif Hanlen",

note = "Funding Information: Profs M{\"u}ller and Schreier, the EU{\textquoteright}s 7th framework program (Khresmoi and 261743); Prof Ohno-Machado by the US National Institutes of Health (U54HL108460 \& UL1RR031980) and the US Agency for Healthcare Research and Quality (R01HS019913); and Prof Salanter{\"a} by the Academy of Finland (140323) and Tekes, the Finnish Funding Agency for Technology and Innovation (2227/31/2010). Adj/Prof Suominen received a travel grant by iDASH. Funding Information: Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US Policies Publisher Copyright: {\textcopyright} 2017 International Medical Informatics Association (IMIA) and IOS Press.; 16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017 ; Conference date: 21-08-2017 Through 25-08-2017",

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doi = "10.3233/978-1-61499-830-3-1312",

language = "English",

isbn = "9781614998297",

volume = "245",

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Suominen, H, Müller, H, Ohno-Machado, L, Salanterä, S, Schreier, G & Hanlen, L 2017, Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies. in AV Gundlapalli, J Marie-Christine & Z Dongsheng (eds), MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics. 2017 edn, vol. 245, Studies in Health Technology and Informatics, vol. 245, IOS Press, Netherlands, pp. 1312, 16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017, Hangzhou, China, 21/08/17. https://doi.org/10.3233/978-1-61499-830-3-1312

Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies. / Suominen, Hanna; Müller, Henning; Ohno-Machado, Lucila et al.
MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics. ed. / Adi V. Gundlapalli; Jaulent Marie-Christine; Zhao Dongsheng. Vol. 245 2017. ed. Netherlands: IOS Press, 2017. p. 1312 (Studies in Health Technology and Informatics; Vol. 245).

Research output: A Conference proceeding or a Chapter in Book › Conference contribution › peer-review

TY - GEN

T1 - Prerequisites for International Exchanges of Health Information for Record Research

T2 - 16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017

AU - Suominen, Hanna

AU - Müller, Henning

AU - Ohno-Machado, Lucila

AU - Salanterä, Sanna

AU - Schreier, Günter

AU - Hanlen, Leif

N1 - Funding Information: Profs Müller and Schreier, the EU’s 7th framework program (Khresmoi and 261743); Prof Ohno-Machado by the US National Institutes of Health (U54HL108460 & UL1RR031980) and the US Agency for Healthcare Research and Quality (R01HS019913); and Prof Salanterä by the Academy of Finland (140323) and Tekes, the Finnish Funding Agency for Technology and Innovation (2227/31/2010). Adj/Prof Suominen received a travel grant by iDASH. Funding Information: Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US Policies Publisher Copyright: © 2017 International Medical Informatics Association (IMIA) and IOS Press.

PY - 2017/1/1

Y1 - 2017/1/1

N2 - The policies that address health information exchanges for research purposes in Australia, Austria, Finland, Switzerland, and the USA apply accountability and/or adequacy to protect privacy. Specific requirements complicate the exchanges: inform data subjects of data use purposes; assure that the subjects are no longer identifiable; destroy the data in the end; and not to use cloud computing without specific permission.

AB - The policies that address health information exchanges for research purposes in Australia, Austria, Finland, Switzerland, and the USA apply accountability and/or adequacy to protect privacy. Specific requirements complicate the exchanges: inform data subjects of data use purposes; assure that the subjects are no longer identifiable; destroy the data in the end; and not to use cloud computing without specific permission.

KW - Electronic health records

KW - Health policy

KW - Privacy

UR - https://www.scopus.com/pages/publications/85040522406

UR - http://www.mendeley.com/research/prerequisites-international-exchanges-health-information-record-research-comparison-australian-austr

U2 - 10.3233/978-1-61499-830-3-1312

DO - 10.3233/978-1-61499-830-3-1312

M3 - Conference contribution

C2 - 29295395

AN - SCOPUS:85040522406

SN - 9781614998297

VL - 245

T3 - Studies in Health Technology and Informatics

SP - 1312

BT - MEDINFO 2017

A2 - Gundlapalli, Adi V.

A2 - Marie-Christine, Jaulent

A2 - Dongsheng, Zhao

PB - IOS Press

CY - Netherlands

Y2 - 21 August 2017 through 25 August 2017

ER -

Suominen H, Müller H, Ohno-Machado L, Salanterä S, Schreier G, Hanlen L. Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies. In Gundlapalli AV, Marie-Christine J, Dongsheng Z, editors, MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics. 2017 ed. Vol. 245. Netherlands: IOS Press. 2017. p. 1312. (Studies in Health Technology and Informatics). doi: 10.3233/978-1-61499-830-3-1312

Prerequisites for International Exchanges of Health Information for Record Research: Comparison of Australian, Austrian, Finnish, Swiss, and US policies

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