@article{2de85fcf121c4b10af5f464627588312,
title = "The POMONA-ESP project methodology: Collecting data on health indicators for people with intellectual developmental disorders",
abstract = "Background: People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders. Methods: The POMONA-ESP project is an observational cross-sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services. Results and conclusions: The results of the POMONA-ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.",
keywords = "developmental disabilities, health profiles, intellectual developmental disorders, intellectual disability, methods",
author = "Annabel Folch and Rafael Mart{\'i}nez-Leal and Paloma Vicens and Marcia Iraz{\'a}bal and Silvia Mu{\~n}oz and Luis Salvador-Carulla and Llu{\'i}s Rovira and Carmen Orejuela and Cort{\'e}s, {Maria Jos{\'e}}",
note = "Funding Information: The POMONA-ESP project was funded by the Fondo de Investigaci?n Sanitaria (FIS) (PI12/01237) (2013?2016) from the Instituto de Salud Carlos III (ISCIII)?Ministry of Economy and Competitiveness of the State General Administration, Spain; and partially funded by Fundaci? Port Aventura. The authors wish to thank all professionals, and participants of the POMONA-ESP project for their contribution. Funding Information: The POMONA-ESP project was funded by the Fondo de Investigaci{\'o}n Sanitaria (FIS) (PI12/01237) (2013–2016) from the Instituto de Salud Carlos III (ISCIII)—Ministry of Economy and Competitiveness of the State General Administration, Spain; and partially funded by Fundaci{\'o} Port Aventura. Publisher Copyright: {\textcopyright} 2018 John Wiley & Sons Ltd Funding Information: The POMONA-ESP project was funded by the Fondo de Investigaci{\'o}n Sanitaria (FIS) (PI12/01237) (2013–2016) from the Instituto de Salud Carlos III (ISCIII)—Ministry of Economy and Competitiveness of the State General Administration, Spain; and partially funded by Fundaci{\'o} Port Aventura. Publisher Copyright: {\textcopyright} 2018 John Wiley & Sons Ltd",
year = "2019",
month = jan,
doi = "10.1111/jar.12497",
language = "English",
volume = "32",
pages = "15--22",
journal = "Journal of Applied Research in Intellectual Disabilities",
issn = "1360-2322",
publisher = "Wiley-Blackwell",
number = "1",
}