TY - JOUR
T1 - The reactions of adolescents, parents and clinicians to participating in qualitative research interviews regarding adolescents bereaved by suicide and other traumatic death
AU - Andriessen, Karl
AU - Krysinska, Karolina
AU - Rickwood, Debra
AU - Pirkis, Jane
N1 - Funding Information:
K.A. is supported by a National Health and Medical Research Council Early Career Fellowship (GNT1157796) and an Early Career Researcher Grant of The University of Melbourne (ECR1202020). J.P. is funded by a National Health and Medical Research Council Investigator Grant (GNT1173126). We are most grateful to the participants for sharing their experiences, and to the numerous individuals and organizations who helped with recruitment and/or hosted the focus groups, especially: The Compassionate Friends Victoria, Support After Suicide Jesuits Social Services, Standby Support After Suicide, headspace National, Anglicare Suicide Prevention and Grief Support South Australia, Sabrina?s Reach 4 Life, and the Australian Centre for Grief and Bereavement.
Publisher Copyright:
© 2022 by the authors. Licensee MDPI, Basel, Switzerland.
PY - 2022/1/1
Y1 - 2022/1/1
N2 - There are concerns that involving adolescents bereaved by suicide and other traumatic death in research may cause distress and harm. However, no study has investigated such bereaved adolescents’ research experiences. In addition, no study has looked at the experiences of parents and clinicians as participants in adolescent suicide and traumatic death bereavement research. This study aimed to explore the short-term impact of research participation experienced by adolescents, parents, and clinicians. A total of 61 participants (adolescents, n = 17; parents, n = 12; clinicians, n = 32) filled out a short survey within two weeks of having taken part in a qualitative interview study. Data were analyzed descriptively. Most participants had experienced no distress while participating and no negative effects of participating; rather, participation was experienced as helpful for them and they would highly recommend participating in a study like this to others. A few adolescents and parents reported some distress, related to anxiety about participation and the unpleasantness of grief memories. The study clearly indicates that bereaved adolescents, parents and clinicians can safely participate in research interviews regarding their experiences of grief and help after suicide, generally valuing the opportunity to share their experience. To prevent and mitigate potential distress, training of research staff and implementation of appropriate participant distress protocols are imperative. Future studies could include longitudinal follow-up of participants to assess any longer-term consequences.
AB - There are concerns that involving adolescents bereaved by suicide and other traumatic death in research may cause distress and harm. However, no study has investigated such bereaved adolescents’ research experiences. In addition, no study has looked at the experiences of parents and clinicians as participants in adolescent suicide and traumatic death bereavement research. This study aimed to explore the short-term impact of research participation experienced by adolescents, parents, and clinicians. A total of 61 participants (adolescents, n = 17; parents, n = 12; clinicians, n = 32) filled out a short survey within two weeks of having taken part in a qualitative interview study. Data were analyzed descriptively. Most participants had experienced no distress while participating and no negative effects of participating; rather, participation was experienced as helpful for them and they would highly recommend participating in a study like this to others. A few adolescents and parents reported some distress, related to anxiety about participation and the unpleasantness of grief memories. The study clearly indicates that bereaved adolescents, parents and clinicians can safely participate in research interviews regarding their experiences of grief and help after suicide, generally valuing the opportunity to share their experience. To prevent and mitigate potential distress, training of research staff and implementation of appropriate participant distress protocols are imperative. Future studies could include longitudinal follow-up of participants to assess any longer-term consequences.
KW - Bereavement
KW - Ethics
KW - Grief
KW - Research ethics
KW - Research participation
KW - Suicide
KW - Traumatic death
UR - http://www.scopus.com/inward/record.url?scp=85122018182&partnerID=8YFLogxK
U2 - 10.3390/ijerph19010452
DO - 10.3390/ijerph19010452
M3 - Article
AN - SCOPUS:85122018182
SN - 1661-7827
VL - 19
SP - 1
EP - 13
JO - International Journal of Environmental Research and Public Health
JF - International Journal of Environmental Research and Public Health
IS - 1
M1 - 452
ER -